Check out the latest events like :
Impact of positive thinking by Dr Gurmeet Narang, Pune Awareness program (Sept 2023) etc.. on Youtube through link provided below;
https://www.youtube.com/ataxiaawarenesssociety
To explore previous events of AAS, visit ‘Events So Far’ section.
Date:July 20th,2024
Event Place: Online on Google Meet
Time: 5 to 6 PM
AAS arranged a webinar on "The Impact of Positive Thinking", conducted by Dr. Gurmeet Narang, renowned as the Man of Happiness. Dr. Narang is an industrialist, humanitarian, motivational speaker, author, motivational speaker and also happiness teacher .
Dr. Gurmeet Narang began the session by accenting the importance of positive thinking in daily life. He shared his personal journey and how adopting a positive outlook transformed his life and career.
He clarified that positive thinking does not mean ignoring reality but approaching life's challenges with a constructive mindset.
At the same time it is very necessary to Acknowledge and confronting negative thoughts instead of suppressing them.
The participants got highly motivated after the webinar and learn about the benefits of maintaining a positive mindset.
Date:March 16,2024
Event Place: Sri Aurobindo Institute of Medical Sciences
Time: 2 to 4 PM
United in strength and spirit, we marked our 6th Foundation Day with a beacon of hope at the Ataxia Awareness Event, in heartfelt collaboration with Shri Arbindo Institute of Medical Science.
Immensely grateful for the time and efforts of the esteemed doctors who graced the event by enlightening lectures, and to students for their amazing participation.
Together, we illuminate the path towards understanding, support, and a brighter future for all affected by Ataxia.
Thank you Dr. Subhash Garg and Dr. Nirnay Keshree and the hardworking team of SAIMS to make this event a success.
Date: September 30,2023,Saturday
Event Platform: Auditorium of Sancheti Hospital
Time: 2 to 5 P.M.
The Ataxia Awareness Society (AAS), Indore, in collaboration with Sancheti College of Physiotherapy, organized an Ataxia Awareness Seminar on September 30, 2023, at the auditorium of Sancheti Hospital to commemorate International Ataxia Awareness Day (IAAD).
Ms. Swasti Wagh, President of the Ataxia Awareness Society, welcomed attendees at the beginning of the seminar. The first session featured Dr. Ichaporia, a Senior Neurologist from Pune, who provided valuable information on the symptoms, causes, and types of Ataxia. Despite its rarity and lack of a cure, Dr. Ichaporia emphasized that proper counseling could significantly improve the quality of life for Ataxia patients.
Dr. Radha Bhattad, Head of the Department at Sancheti College of Physiotherapy, followed with insights on how physiotherapy can help control the progression of Ataxia.
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Date: October 22,2023,Sunday
Event Platform: Zoom
Time: 4 to 5 P.M.
The Ataxia Awareness Society recently hosted a compelling online motivational talk featuring Alma Chopra, an inspiring ataxia warrior. Alma shared her personal journey, highlighting challenges faced and victories achieved while living with ataxia. Her motivational discourse focused on the importance of a positive mindset in navigating life with a rare condition.
Participants gained valuable insights into overcoming adversity and fostering a sense of community and support. Alma's empowering message aimed to inspire not only those directly affected by ataxia but also to raise awareness among the wider audience about the strength and determination of individuals facing such challenges.
Date: January 26, 2023, Thursday
Event Platform: via Zoom Video Conference
Time: 06:00 P.M.
AAS celebrated 24th republic Day with ataxia patients from all over India on 26 January 2023. The program was conducted on the zoom platform. The program started with our national anthem.
A small quiz on Republic Day was carried out by Shri Dashoriiya. After this ataxia patients give their presentations of Patriotic songs and poem etc.
The program ended up with vote of thanks by Swasti Wagh.
Date: April 6,2022,Wednesday
Event Platform: SGSITS College, Indore
Time: 11:50 A.M.
AAS held its 4th Foundation Day celebration in association with Biomedical Engineering Department ’ with the objective to discuss ‘The Role of Technology in Rehabilitation of Ataxia Patients’ and to create awareness about Ataxia among engineering students.
The event started with Saraswati Vandana by Ms Abha Jaiswal and lighting of lamp by chief guests of the event.
Mr Prateek Vyas, (event anchor) gave introduction the chief guest Dr. Apoorva Pauranik .Dr R.K. Saxena (Director - SGSITS) said that biomedical field plays an important role in the development of assistive devices for disabled persons.
Dr Prashant Bansod (HOD – Biomedical), told that ataxia patients face various problems in their day-to-day life, he assured that the department will develop assistive devices with the help of technology which will be helpful for ataxia patients. Read More
Date:August 25, 2022, Thursday
Event Platform: Balda Colony, Indore.
Time: 12:00 P.M.
Genetic ataxias are of different types .The type of genet ic ataxia can be known only by genetic testing .Although genetic tests are available only for some types of ataxias ,Ataxia Awareness Society arranged a blood sample collection camp for DNA test at Balda Colony,Indore.Read More
Date: August 27, 2022, Saturday
Event Platform: Hukumchand Poly clinic, Indore
Time: 11:00 A.M.
A disability certificate or a PwD certificate holds significant importance for persons with disabilities. It allows disabled individuals to avail the benefits, facilities and concessions offered under different government schemes.
The medical boards of respective states and districts issue a disability certificate. The board generally comprises a Chief Medical Officer or a Sub-Divisional Medical Officer in the district and another expert in the specified field such as ENT Surgeon, Ophthalmic Surgeon Read More
Date: october 8th-9th, 2022, Sat-sun
Event Platform: Akshat Garden, Indore
Time: Complete Two Days
"Ataxia Awareness Society (AAS) " of Indore organized a 'National Ataxia Summit' . The founder of the organization, Swasti Wagh, told that Ataxia patients and their caretakers from different states of the country participated in the summit. Various sessions like physiotherapy, panel discussion, speech therapy, motivational talk, meditation, musical evening Read More
Date: April 18, 2021, Sunday
Event Platform: via Zoom Video Conferance
Time: 05:00 P.M.
Generally all Ataxia patients find problems in doing day to day activities like buttoning, brushing, eating ,writing etc. due to incoordination and imbalance. These problems could be minimized to some extent with the help of occupational therapist. Therefore AAS arranged an interactive occupational therapy webinat on 18th April 2021.In the webinar occupational therapist Dr. Yashswini ,delivered a talk on how the performance of day to day activities can be improved by doing simple modification and also demonstrated some simple exercises and techniques to control hand tremors while writing and doing other activities. Read More
Date: January 03,2021,Sunday
Event Platform: Zoom Platform
Time: 4:00 P.M.
With the progress of the disease Ataxia patient often suffer from speech and swallowing problems. Because of slurred speech they are unable to communicate with others.In severe cases even their care takers are unable to understand them.A webinar was arranged by AAS to guide the ataxia patients how to cope up with these problems.The webinar was arranged
Spech therapy doctors,Dr.Mansi Karnad and Dr. Tanvi Sanghvi of All India Inst. Of Speech and HearingRead More
Date: May 09,2021,sunday
Event Platform: Zoom Platform
Time: 4 to 5 P.M.
AAS arranged a webinar on ‘Dietary Awreness For Ataxia With Other Comorbidities’ .The webinar was held virtually .Mrs. Poonam Vishal Jwell .Sr. Nutritionist and Dietitian and Secretary IDA (M.P. Chapter) spoke on essential diet for Ataxia patients to cope up with their muscle weakness and associated diseases like diabeties,hypertension,heart problem etc. She also suggested healthy diet tips in this pandemic period and which diet can help to overcome extra weakness and fatigue after corona.
Date: March 14,April
04,2021,Sunday
Event Platform: Zoom Platform
Time: 4 to 6 P.M.
With the successful completion of three years, Ataxia Awareness Society (AAS) celebrated its third foundation day ceremony .The event was held virtually on zoom platform. Participants from all over the India joined the event.Some delegates from FARA also attended the event.The program started with Saraswati Vandana by Mrs. Sudha Wagh . A welcome note was given by the President of AAS Ms. Swasti Wagh. After this shri Narendra Edlabadakar (Secretary of AAS ) gave a presentation about the activtes carried out by AAS in year 2020-21 and future programs of AAS.Read More
Date: December 18,2021,saturday
Event Platform: Zoom Platform
Time: 11:50 A.M.
AAS organised a webinar on ataxia - a rare neuromuscular degenerative condition . The webinar was held virtually on zoom platform. More than 150 particcipants joined the webinar.
The introduction of AAS was given by Manan Gupta (AAS volunteer) through ppt presentation. Then Ms. Archi Gupta (volunteer) gave introduction of AAS patron Dr. Apoorva Pauranik and AAS president Ms. Swasti Wagh.
Dr. S.H. Subromony (M.D. neuromuscular Neurology, professor at University of Florida) was our guest speaker. He shared information about ataxia, it's different types and recent developments in Ataxia research.He discussed about genetic and non-genetic causes of ataxia. He also talked about the genes responsible for most common autosomal recessive cerebellar ataxia.
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Date: September 27,October 11,2020,Sunday
Event Platform: Zoom Platform
Time: 5 to 6 P.M.
A virtual workshop on “Balancing Exercises for Ataxia Patients” was organized by Ataxia Awareness Society (AAS) in association with Neuro physiotherapist Dr. Bhavesh Choudhary. The Camp received an overwhelming response as Ataxia patients from entire Country attended in large number to learn Balancing Exercises and clear their doubts in second session.Dr.Bhavesh Choudhary, Neuro-physiotherapist demonstrated variety of body balancing exercises for ataxia patients. Read More
Date: January 11,2020,Saturday
Event Platform: Balda colony, near Mhow Naka, Indore
Time: 12 to 3 PM.
It is the objective of AAS to help Ataxia patients .Recently we came to know that there are few families in which 3 to 4 members in each family have problems that resemble Ataxia. So, AAS team visited at the location and found out that these people are completely unaware of problems like Ataxia. So AAS decided to organise a camp in Balda colony, near Mhow Naka, Indore on 11th January 2020.
3In this camp, Dr. Apoorva Pauranik examined each patient thoroughly and diagnosed them. Many of them were found to have Ataxia. Physiotherapist Dr. Bhavesh Chaudhari and Dr. Deep
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Date: January 12,2019,Saturday
Event Platform: Pauranik Neuro Center,Indore
Time: 2:30 to 5 PM.
A Camp on Speech therapy was organized by Ataxia Awareness Society (AAS). The event was organized to give in depth knowledge about speech to ataxia patients. The camp received an overwhelming response as ataxia patients from Indore as well as nearby places like Khargone, Mhow attend in large number to learn Speech therapy. Read More
Date: April 7,2019,Sunday
Event Platform: IPS Academy, Indore
Time: 3 to 6 PM
Ataxia Awareness Society (AAS) organized a Foundation Day Celebration in collaboration with ICSR and IPS Academy, Indore. The event was organized to provide in depth knowledge about Ataxia to all concerned persons.
The event initiated with the Welcome Speech which was given by Ms. Swasti Wagh (President of AAS). Afterwards, the event was followed by Saraswati Vandna by lighting the lamp ceremony which was done by the Chief Guest.
Ataxia Awareness Society gave the short introduction of all the chief Guests present there that is Dr. Anil Bhandari. (Founder of NGO('Sahayata')
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Date: October 13,2019,Sunday
Event Platform: Pauranik Neuro Centre,Indore
Time: 12 to 3 P.M.
The aim was to develop a friendly relationship among patients and caregivers, providing a platform to share their challenges.
The event commenced with a captivating song performed by AAS members Mrs. Sudha Wagh and Mrs. Jyoti Joshi. Patients were encouraged to showcase their abilities, receiving gifts for their participation, enhancing confidence, and overcoming hesitations.
Health concerns were openly discussed with Dr. Apoorva Pauranik, while specialists - Physiotherapist Dr. Bhavesh Chaudhari, Occupational Therapist Dr. Garg, and Speech Therapist Dr. Vibhuti Birthare - enlightened attendees on leading fulfilling lives despite Ataxia-related challenges.Read More
Date: May 22nd to 18th June
Event Platform: Google Meet
Time: Afternoon
Slurred speech is very common problem among ataxia patients. Ataxia Awareness Society (AAS) organized virtual workshops on Speech Therapy. The 5 sessions of this webinar (on May 22nd ,24th ,28th June 8th and 18th 2020) were conducted with the help of ZOOM APP & Google Meet APP.
Speech & Language Therapist Dr. Vibhuti Birthare demonstrates variety of pronunciations and Speech Therapy Exercises to ataxia patients. Everybody actively participated in the webinar by performing exercise instructed by Dr. Vibhuti. The basic objective behind organizing this meeting was to help them, so that they can speak with clarity and as well as audible to others.
Date:September 26,2021
Event Platform: Zoom App
Time: 4:00 PM
AAS celebrated international ataxia day on Sunday ,26th September 2021 at 4 PM on zoom app. Renowned social worker Padmashree Janak palta was chief guest of the event.
Participants from all over India attendes the event. The president of AAS, Ms. Swasti Wagh, along with entire AAS team were present in the event. The main object of this event was to create awareness about ataxia in the society and encourage ataxia worriers.
The event was started with saraswati vandana sung by Smt. sudha wagh .Then president of AAS ,Swasti Wagh, delivered a welcome note to all the participents in the webinar. AAS patron Dr.Apoorva Pauranik also gave an inspirational speech .
Mrs. Jagruti Upasini gave brief introduction of chief guest and her achievement in various fields.
Our chief guest Smt.Janak Palta, gave very inspirational and motivational speech. The key point was ‘हम मरेंगे कैसे यह हमें नहीं मालूम पर जीना कैसा यह हमारे हाथ में है।
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