Welcome to Ataxia Awareness Society

Ataxia Awareness Society (AAS) is a unique non-governmental. A voluntary organisation and I am proud to be associated with it.

The abbreviation AAS – Ataxia Awareness Society, pronounced as AAS, means in Hindi- ‘Hope’. It really is a harbinger of hope.

This Society and its activities are the labor of law of one indomitable Swasti Wagh. She is a survivor of Friedreich’s Ataxia for the last 20 years.

She is wheelchair bound but her spirits are unbound. She has a small dedicated team to spearhead the mission of Ataxia Awareness Society not only in Indore or not only in the region but all over the country.

All the best for this wonderful organisation.

I came across AAS while searching on Google and immediately registered my name on the site. I felt like one with this family, sailing on the same boat. AAS has been founded to spread ataxia awareness in the society and bring all the Indian ataxians together. I received immense knowledge and had fun attending the Sociey’s Foundation Day. The celebrations, valuable lectures by renowned faculty on Ataxia, enriched my knowledge regarding Ataxia. The enthusiasm of few ataxians took the celebrations to the next level. As there is no particular treatment of this disease yet, the mental support that I got in the ambiance is beyond words. Looking forward to attend more of such events by AAS and thanx to miss Swasti for her enthusiasm & encouraging attitude!

It was a privilege to be associated with the AAS meet held in Indore on the 9th and 10th of October 2022. The idea was well conceived and efficiently executed. Interacting with patients that had traveled around the country to be at Indore was an enlightening experience. As therapists, we became more sensitive to patients’ problems and it gave us great insight into the multiple domains of disability that ataxia patients have. We left becoming more aware and attuned to the realities and problems of spinal cord ataxia patients. These kinds of events are extremely important and relevant for us to evolve as better therapists and human beings. I look forward to being a part of many such meets in the future. I wish the members of AAS all the very best in their future endeavors.

I am a patient of FA (Friedreich’s Ataxia), a type of ataxia, which is one of the many rare diseases. It was my mother and other FAer friends who brought AAS (Ataxia Awareness Society) to my notice. I was really happy to find out an NGO that is set up for the Indians dealing with ataxia. The organisation is relentlessly working to spread awareness about this disease with various events and meets. The team here is consistently working for the betterment of people with the disease by facilitating genetic testing of the patients, conducting numerous training sessions, issuing id cards, etc. Thank you AAS and team and I wish you the best.

I was already in touch with Swasti Di (the co-founder of AAS) through social media channels and so became familiar with the NGO. Although I did not personally attend any of the meetings and conferences arranged by AAS, but was fortunate enough to be able to attend them virtually via Zoom. With every session I came to know more about the disease from the many doctors, how to overcome the difficulties of everyday life by counselors and also came to know about the Rare Disease policies made for the benefits of the patients. I am very thankful for the Physiotherapy and speech sessions arranged by the NGO that helps me a lot.

While browsing online for some information regarding ataxia, I came across the site of AAS. After taking a glance at the home page, I was glad to know about his Ataxia NGO in my country and without any further a-do, I registered myself with AAS and joined the group. Soon I came to know about the wonderful works that AAS does. I got a beautiful family of friends who all were sailing in the same boat. Communicating with each other, we not only figure out ways to manage the difficulties faced in our daily lives, but al.

I am very pleased to say that my experience of associating with Ataxia Awareness Society (AAS) has been excellent and I feel it is a privilege too. My appreciation for the excellent work AAS is carrying out in uplifting Ataxia Patients. The main tasks of AAS in the health system are providing services and health advocacy. Provision of services includes medical, social and psychological services as well as, integration activities, care, material and financial support, educational and information services and training.