I am a patient of FA (Friedreich’s Ataxia), a type of ataxia, which is one of the many rare diseases. It was my mother and other FAer friends who brought AAS (Ataxia Awareness Society) to my notice. I was really happy to find out an NGO that is set up for the Indians dealing with ataxia. The organisation is relentlessly working to spread awareness about this disease with various events and meets. The team here is consistently working for the betterment of people with the disease by facilitating genetic testing of the patients, conducting numerous training sessions, issuing id cards, etc. Thank you AAS and team and I wish you the best.